An Exciting Two Weeks

Owen continues to do well.  This past week we have experienced some minor setbacks from the new and improved Owen we had been enjoying since March.  Based on his coughing, we assume he has a cold, and that means Owen's less desirable habits (not eating or sleeping) have returned.  On the positive side, Owen and Pete are able to stay up late and catch all the overtime minutes the Bruins are playing.

Next Wednesday, my mom (aka Meme) is returning for a month.  We are all very eager to have her back in the house.  Owen gets in some splendid snuggle time with his Mammie (Pete's mom) twice a week so this will be a bonus for him.  The following Saturday, is Ellie's 2nd birthday.  He will be partying alongside her at a very fun music class.   After all of the celebration of next week, we will be getting down to business.

Owen has another MRI scheduled for May 3rd.  Pete and I are very eager to see what it shows and what Dr. T thinks of it.  We were incredibly frustrated by the lack of information we received after his last MRI in December.  This time we are more realistic with our expectations and will take any new information about Owen with eager ears.  We are also awaiting test results from three different disease categories.  Leukodystrophy is still in the mix, but we are also exploring a variant of Rhett's Syndrome, chromosomal defects, and another mitochondrial disease.  All of these are due back in early May, so fingers crossed, we will be learning more about our little guy soon.