Wednesday, August 29, 2012

One Year Strong


 On Monday, we had the amazing opportunity to celebrate Owen's first birthday.  I am so grateful for my baby boy.  Six months ago, Owen was on hospice and I held very little hope that he would still be with us for his birthday.  Owen continues to be a mystery, an amazing little puzzle who brings sweetness, joy, and love to our life.  He was born in the midst of a hurricane and his first year of life was a symbolic extension of that storm.  This past Monday was a beautiful, sunny, warm day and I pray that this next year will be an equally bright journey for Owen.


Owen- August 27, 2011
Owen- August 27. 2012
The cake Ellie decorated for Owen
A very happy family 

Welcome to the party!  Owen rang in turning ONE with a pool party at his Mammie and Bankie's house
The cake Mommy made and Daddy decorated for Owen
Ellie enjoying a cupcake


Me and my boy on an amazing day

Happy Birthday Owen! We LOVE you!
Owen's birthday was wonderful milestone for us (yes, a milestone! Check it off the list).  To mark the day, to celebrate all of the challenges, heartache, struggle, hope, love, and faith our family has gone through these past twelve months, we planted a tree for Owen.  My mother-in-law chose a Dwarf Alberta Blue Spruce- selected with Owen's beautiful blue eyes in mind.  We planted the tree in their front yard, near the Black-eyed Susan, which returns each August with their happy flowers in full bloom. 

Owen's tree

Our family has been touched by many people this past year who have offered us help and support.  For months, we had meals delivered from our church and there was a steady stream of people providing loving arms to comfort Owen.  We have been blessed to collect many new friends and we are so thankful for the support.  Owen has an amazing ability to connect with people.  His long eyelashes draw you in and his red hair (with curls emerging) is quite adorable.  During this past month, I gifted a few special people, "Owen's Ladies" as I call them, with their own Black-eyed Susan to plant in celebration of Owen's life and their role in it.  If you are a reader of the blog and have a green thumb, plant some in honor of Owen.  These beautiful flowers are strong, a perennial- they will come back every year, and bloom during Owen's birthday month. 
Here is what they look like- Rudbeckia is their scientific name
It was a great day, a special birthday party, and a reminder of what an amazing family Owen was born into.  It was also Pete's birthday.  For the second year in a row, Owen has completely monopolized the day.  I hope that happens for many more years to come (sorry Pete!).  
My delicious baby when he was a few weeks old
Happy Birthday Owen! 

Saturday, August 11, 2012

Let Me Tell You a Story....

Let me tell you a story of an adorable little boy who loves to keep his mommy on her toes. One day last week, Owen decided to spend his afternoon in one of his "hold me and never put me down" moods.  Owen always wins these battles and I held him while entertaining a two year old.  Exhausting is a word that comes to mind.

I eventually came to a task that required two hands and with a stern talking to, I plopped Owen into his nap nanny for a minute.  I assured him it would only be a minute and that I would be right back.  In a weak effort to entertain him, I placed Ellie's baby doll on his lap for him to explore.  Off I went- and I did just as I said- and returned in a minute or so.  My little guy was very busy while I was gone.

Due to Owen's limited or lack of vision (we will know more concretely in October after his vision exams), we always provide him with tactile things to explore when he is on his own.  With the help of his teacher, Rose, we made a toy bar out of PVC pipe which can straddle his nap nanny and we can hook toys to it.  When not in use, I put the bar behind the bed up by his head.

While I was off completing my task, Owen reached above his head and yanked his toy bar forward so that he could play with it.  For me, this was an amazing moment.  Owen demonstrated purposeful movement- he wanted his toys and was able to coordinate his arms and hands to get what he wanted. Go Owen!  Here is a picture I took of my little turkey with his toys:



In moving on news... we have taken apart Owen's crib.  Ellie was just six months old when I got pregnant with Owen.  We quickly realized we would need a second crib because Ellie was going to be too young to be in a bed when baby #2 arrived.  We moved Ellie across the hall and decorated her room in little girl colors, owls, and butterflies.  It was so much fun. We did not find out the gender of Ellie or Owen before they were born, so we had a very cute, gender neutral nursery awaiting our  new baby.  In his first year of life, Owen has spent no more than a total of an hour in his crib- not consecutive.

Owen currently sleeps on a beanbag his OT has loaned our family.  Or in our arms.  There are so many little things that fill me with sadness about what I am missing out on with Owen.  I stress the "I" because this is about me, not Owen.  Owen is living a great life in his world right now.  He seems very content and peaceful.  I love every little piece of him and as long as he is happy then that is the best I can hope for. 

Not a day goes by that I am not reminded of what we aren't doing with Owen.  Whether it is friends, co-workers, or strangers on the street, I am reminded daily of the milestones we aren't hitting.  There are no moments of watching Owen sit up,  roll over, slurp baby food off of a spoon, pull himself up on his feet, belly laughs when we make faces at him, babbles, or peaceful sleeping in his crib.  It is a heartbreaking journey for a mother.  

The crib is going into storage.  Along with lots of baby clothes.  I just can't give up hope that maybe someday Ellie and Owen will get to have another little sibling to play with.  I think Owen would make a great big brother and Ellie has already proven her merits as a big sister.  Maybe we will figure Owen out and have another baby, maybe we will adopt, or maybe there will never be more children.  I guess I am just not ready to give up the dream.  In the meantime, Owen has won again...the crib is gone and in its place is a beanbag with a snazzy dinosaur blanket.